Meet the FamiliesSeattle-children-logo

 

Alexander Logan

Alexander-LoganThis is Alex. He was diagnosed with high-risk ALL leukemia on January 6, 2017! Alex was sick off and on October-December. We finally made it to Alex's regular pediatrician. She sent us to Capital Medical Center to get blood work done. On Friday, January 6, that night our doctor called me and told me to get a pen and paper and to sit down. She told me that our little boy's white blood cell count was really high and read like count was really low. That we had to go to Seattle children's E.R. right way. So Darnell (Alex's big brother), Jerry (dad), and I packed really quickly while crying and not really understanding what was going on. We got the E.R. around 6-7 pm and waited in the E.R. for the blood work. Yes in fact Alex had high risk ALL leukemia! We got moved up to the 7 floor. Alex is now 2 years old and his birthday is June 3rd. Darnell is going to the Fred Hutch School. We live at the Ronald McDonald House with hopes to move back home in October-November.

 

Reese Scriver

Reese-ScriverReese is the youngest of five children. She has three sisters and one brother. She was named after her grandparents. She loves animals, books, carbs, music, TV, and walks outside. Her favorite shows are Word Party and Zootopia. Her nick name is Risu.

On April 21, 2017, at fourteen months old she was pre-diagnosed with Wilms' Tumor aka Nephroblastoma. We were immediately admitted to Seattle Children's Hospital.

Four days later, she had a six hour nephrectomy/tumor removal, and port placement. During surgery they will usually make a "preliminary diagnosis" with fair certainty. The oncologist in the OR would not make a call. It took five days for pathology to comeback and confirm Stage 3 Wilms' Tumor with favorable histology.

A week later she had an ovarian transposition. A couple of days later she started a "moderate treatment" schedule of six radiation sessions and twenty-eight weeks of chemo. We got to go home Mother's Day weekend after three weeks in the hospital. She has had one hospital stay and many ED visits. She is now finished with radiation and we’re 10 weeks into chemo schedule.

For seven weeks she had an NG Tube. She would vomit it up almost daily. She is now happily off of the NG Tube.

She enjoys walks in the garden, playing piano with daddy, reading books with mom, dad and grandma, and playing with us all. Reese is a very intelligent baby, incredibly easy to love and a fighter against this terrible monster.

We believe in the power of prayer and have seen many miracles during our time at Seattle Children's and within our precious baby. Our most recent miracle is that she can thrive without an NG Tube and no longer throws up all day because of it.

 

Izaiah Trillas

Izaiah-TrillasIzaiah is a 6 year old boy who turns 7 in August. He is an active little boy who loves being crazy and rambunctious with his older brother and two little sisters. He loves school and is a quick learner. He's a shy boy until he gets to know you. He loves video games, Minecraft, LEGOS, swimming, jumping on the trampoline, camping, and riding 4 wheelers. Izaiah was diagnosed with High Risk ALL, Philadelphia Like and CRLF2 on February 14, 2017 in which we were airlifted to Seattle from Yakima, WA. His white counts was 750k. His body had responded well to his treatments and thus far has had 2 setbacks in almost 5 months which we feel is amazing. We are supposed to be in Seattle until October or November depending on how many setbacks occur throughout treatment.

 

 

Steven Sattler

Steven SattlerShortly after Easter of 2017, Steven was diagnosed with T cell accute leukemia. He just celebrated his 12th birthday on June 27. We are currently seeking treatment at Sacred Heart of Spokane. We were rushed up here by his primary doctor in Clarkston when I took him in because his neck was badly swollen. His labs came back and our doctor was concerned. Steven loves his dog, video games, and pokemon. He is responding well to treatments and so far he is doing well.

 

 

 

 

Savannah Lingenfelter

Savannah LingenfelterOn September 3, 2012 Savannah woke up with yet another high fever and pain. She was only 2 1/2 years old so it was hard for her to tell us what was really wrong. We took her to the ER at Mary Bridge Children's Hospital in Tacoma, WA. We learned within a few hours that Savannah had cancer. Acute Lymphoblastic leukemia to be exact. We were admitted immediately so she could get blood and platelet transfusions and she started chemotherapy the very next day. Savannah went into remission early and was classified low risk. She sailed through 2 1/2 years of treatment with minimal side effects. She rang the “No Mo chemo” bell on March 3, 2015. Savannah continued off treatment care and was doing amazing with life after chemo.

That all came to an end when she started experiencing headaches, back pain, and chronic fatigue. A CT Scan on April 15, 2017 showed concerning abnormalities in Savannah’s skull and we were taken by ambulance to Seattle Children's. After several tests to include neuro surgery, we were given the news that Savannah’s cancer had indeed returned. After four years of remission and two years off treatment, the leukemia was back. This time it was not in her blood but in her bone in her skull and spine. There are no cases like Savannah’s that we can find. No one here had seen Leukemia come back like this and after such a long remission for a low risk case. Savannah began aggressive relapsed treatment on April 23, 2017. We are praying this treatment gets Savannah’s cancer back in remission forever. We are currently living at Ronald McDonald House during the most intensive phases of Savannah's therapy. Mom (Cheryl) and Dad (John) are big military veterans as well. Savannah has an older brother Robert, Sister Lizzy, and two dogs at home. She loves gymnastics, American Girl dolls, doing crafts, going swimming, soft cuddly blankets, and going to the movies.

 

Pippa Stuhlmiller

Pippa StuhlmillerPippa was diagnosed with an inoperable low grade astrocytoma (brain tumor) a few months before her second birthday. Her tumor was discovered in October of 2016 after months of mysterious vomiting and then finally a loss of balance that made us take her to the ER for an MRI. She had a VP shunt placed to relieve the pressure that the tumor had built up. Pippa has started chemo and will need it for the next year. She will have a G-tube placed soon because she is unable to gain weight, but she has continues to be her happy self in between treatments.

She is outside more than in. Loves laughing at her older brother, making her baby sister giggle, and pointing out every animal she sees. She is such a sweetheart and we are so glad to have our Pippa.

 

 

 

Jeffery Flores-Santiago

Jeffery Flores-SantiagoWe prayed and prepared for another blessing to complete our family. Our 3 older children were so excited and could not wait for God to give us a baby to have forever. We got the news in November 2015 that we were expecting summer of 2016. On Thanksgiving day our Lord called our baby home. During December 2015 my blood showed I was still pregnant. I cried so hard and began to pray that my body was able to hold another baby. December 28th it was confirmed I was still pregnant and lost one of my two babies inside me. Baby Jeff, our rainbow baby made his entrance late but was perfectly healthy. He completed our family so perfectly, 2 girls Maricela and Michelle and 2 boys Angel and Jeffery. Baby Jeff was healthy and happy. Baby Jeff caught a few colds but always managed to get better. Until March 6th when we originally took him into the emergency room. Shortly after arriving with a 6 month old that was working hard to get air, they sent us home with a false diagnosis of bronchiolitis. We then took him to the doctor with him getting worse on March 8th. Our pediatrician said to take him straight to the emergency for an overnight watch as his oxygen level was very poor. We took him to the emergency department and they suctioned his nose and placed oxygen on him. He was still lying helpless. The nurses were getting ready to discharge us yet again. I stood there and said look at my baby he is not even moving, I'm not leaving! My doctor said I can stay 24 hours. So I called my doctor and she ordered labs as I explained that he had not eaten. She wanted to make sure he was not lacking nutrition as I was strictly breastfeeding. Shortly after, our whole world came crashing down.

The words no family should have to hear: I’M SORRY YOUR SON HAS CANCER.

Since then baby Jeff went through 3 rounds of chemo.

Baby Jeff has a very rare childhood cancer called juvenile myelomonocytic leukemia (J.M.M.L). He has the kras mutation. Lucky for baby Jeff his brother Angel is his perfect match and will be his bone marrow donor at the age of 5. Angel is a perfect name for baby Jeff’s older brother as he is trying to saving his life.

We are excited to announce that Jeff is currently in remission! Jeff is still in the ICU fighting after damage was caused by chemo and prayers are still appreciated. But it is still a joyous moment that Jeff is currently cancer free!

 

Reed Cooper

Reed-StrongAbout a month after Reed's 3rd Birthday, my husband took him to Swedish's Urgent Care for pain, nausea, and bearing down to pee but couldn't. After they did a quick catheter to drain his full bladder they diagnosed Reed with Balanitis and prescribed topical ointments. They had us follow up with our pediatrician the next day and gave us a referral to a Pedo Urologist.

The next day Reed saw our pediatrician and felt that it was not Balanitis but an obstruction and had us go to Children's that night. At Children's ER a catheter was placed and instructions given on how to take care of the catheter until we could get into Children's Urology the following Monday or Tuesday.

Over the long weekend Reed and us did not get much sleep because he was in a lot of pain and discomfort that Children's told us was probably coming from the catheter.

On Tuesday, Children's Urology saw Reed for a voiding trial, during the 4 hours he was there he did not pee so they sent him home with a sedative and warm bath instructions to see if he would pee at home. That night was not fun he was in so much pain, bearing down saying he wants to go but can't. He would fall asleep then wake up over and over again. In the morning I called Children's Urology and said we need to be seen immediately, they had us check in with the Emergency department where Reed was catheterized and I was told to follow up the following Monday or Tuesday with Urology. I said, "No I'm not leaving here for another long weekend of no sleep and pain, I'm asking for help and I don't understand how this has happened so acutely that we have never had a problem with him peeing until now, something is not right!" At that point they decided to do a ultrasound of his bladder and kidneys. They found a ping pong sized mass behind his bladder, that had pinched off his urethra explaining why he could not pee! That night we were admitted to the Oncology floor, the next day Reed had a CT SCAN & MRI confirming cancer. That Friday Reed had a biopsy, bone marrow extracted, and a port a catheter central line placed. The following Wednesday the pathology report was back with our diagnosis: Intermediate Risk Embryonal Rhabdomyosarcoma of the Prostate.

Our treatment 43 weeks of Chemotherapy, Radiation 5 days a week for 5.5 weeks, and possible surgery.

We are about to start week 10 of Chemo as I'm writing this and Reed finally was able to pass a voiding trial and get rid of the catheter yesterday after our 3rd in patient admittance with catheter associated UTI.

Reed has been amazing during all of these new events and is able to articulate exactly what he needs. He loves his big sissy Kenzie, his kitty Lexie, dinosaurs, monster trucks, construction equipment, and playing outside. Momma, Daddy, Papa Gene and Grandma, Papa Carl, and all his Aunties and Uncles and Cousins love him as he loves us all too. He is our Reed Strong and we are going to beat this!

 

Holley Cook

Holley CookHolley Cook was diagnosed with A.L.L pre-B cell Philadelphialike leukemia at the age of 3. She was diagnosed October 19, 2016. On October 18, 2016 we got transported to Seattle Children's Hospital due to her white blood cell count being so high. She has been a very strong little girl and has been through so much. She has not been on time with any of her chemo treatments due to infection and her having so much pain with mucussitus. But through it all she's been such a strong happy little girl. She loves to hunt and fish with her dad, she loves to draw and color, she's just a very spunky little girl. She loves princesses, her favorite one is Tangled. When she lost her hair she cried and said that she wanted to have her hair to be as long as Tangled when it grows back. Since she's been diagnosed she has accepted the fact and when people ask her about her feeding tube or why she has no hair she tells them exactly what is going on with her. Holley has an older sister and her name is Haley and she is 6. She misses her everyday so when sister comes she is so happy to see her. Thank you for taking the time to read about Holley. We appreciate all that you do. (Written by Holley's mom.)

 

 

 

 

 

Dylan Herrick

dylan-herrickDylan was 6 years old when he was diagnosed with Acute Lymphoblastic Leukemia (A.L.L.) He was diagnosed at Sacred Heart Children's Hospital on May 17, 2016. Dylan's treatment will last 3 and 1/2 years, with a high chance of cure. In spite of all that he has gone through thus far, Dylan keeps an amazing attitude and smile on most days. He loves to create art, play video games and collect Pokemon cards. Dylan is wise beyond his years and makes friends easily. Dylan is also interested in becoming a chef. While staying at the Ronald McDonald House, with an increased appetite from Steroids and low energy, he opted to watch the Food Network. His favorite show is Chopped Junior. He now has his own cooking supplies, attire and mastered the art of frying eggs! Dylan is constantly amazing doctors and nurses with his patience and ability to sit still and remain calm and in good spirits during blood draws, accessing and de accessing his port, treatments and preparing for his LP procedures. He especially loves searching for new "poke prizes" and playing music while in the waiting room. Dylan is definitely a trooper and a pure delight to be around!

 

 

 

 

 

Pablo Rojas

pablo-familyIn the summer of 2014, I had pain in my right leg. School started and there was a big bump by my hip. The pain continued so I asked my mom to take me to the doctor. The doctors checked it out and said it might be a tumor. I really didn't know what a tumor was and my mother was scared. I had a biopsy and found out that I had stage 4 cancer. The doctors then ran x-rays and also found tumors in my lungs. I had chemo for 2 months in the hospital and continued treatment for 8 months. The pelvis tumor shrank so I was able to have surgery to take it out. The tumor ate my whole pelvis but luckily they could replace it with a bionic one. It took about 5 months to recover from the surgery but the tumors in my lungs went away! In 2016 the tumors in my lungs came back and I am still trying to overcome it.Please continue to keep Pablo and his family in your prayers as they battle this awful disease together!

 

Ireland Wylam

wylam-familyOn New Year’s Day, a massive brain tumor was discovered in three-year-old, Ireland. Doctors estimated the tumor itself, accounted for about 25% of the physical brain mass.

On January 11th, it was confirmed that her tumor was malignant, and she was formally diagnosed with an Embryonal Tumor with Multilayer Rosettes-ETMR (formerly known as PNET). The past two months have been trying for her, at best, but she has continued to amaze us all with her courage and ability to accept her new reality with a smile! Ireland is scheduled to endure a remaining seven months of aggressive treatment to regain her life as the healthy, sweet, and spunky girl that we all know. She is anxiously awaiting the day that she is "feeling better," and can return home to be with her daddy and the pets she has had to leave behind.

 

 

Preston Scott

Preston-ScottOur precious little Preston, at 5 years old, has already been through so much throughout the past year and a half. (6.5 now) These past few months have been especially hard on us as parents, grandparents, family, and friends with the news that no parent wants to ever hear. Preston relapsed almost immediately after treatments.

Preston was diagnosed October 2014 with Regular Medulloblastoma and fell into what they called standard risk which they say has an 80-85% cure rate.We had every reason to believe that treatments worked given every scan had showed nothing new. But on January 20, 2016 his scan showed two new spots. We were devastated! Relapsed Medulloblastoma patients usually don't make it. Maybe 1 out of 20 kids will get through their relapse. WE HAVE NEVER GIVEN UP HOPE!

At this point, we have minimal options, other than more chemotherapy thatmay help extend Preston's life for another 16-18 months. This isn't good enough for us or for our Preston.We ask for your prayers, positive thoughts, and energy for Preston! We are lucky enough to have Preston home with us right now. He is doing fairly well and in great spirits. Preston is such a great joy to us and brings us sooooo many smiles every day! We want to keep those smiles and laughter around! Thank you in advance for your help, hope, and prayers! WE WON’T GIVE UP HOPE!

 

 

 

Thanhvan Nguyen

Thanhvan-Nguyen After 2 weeks of increasing back pain, abdominal pain and headaches Thanhvan was diagnosed with Lymphoma on 12/21/2016. She has been undergoing intensive chemotherapy with weeklong stays in the hospital every other week.

Thanhvan is a bright and caring girl who enjoys spending time with her family and friends. She is in the running start program through Tacoma Community College and continues to do orchestra through her local high school. Her Mom has taken off 3 months of work to care for Thanhvan full time, Footprints of Fight is a huge resource to the family.

 

 

Emry Hansen

Emry-Hansen Emry is a beautiful 3 year-old who lives with her amazing grandparents. On June 20, 2016 she was diagnosed with B Cell Acute Lymphoblastic Leukemia. She has already gone through so much in her short 3 years and now she is in the fight for her life.

Emry continues to fight through all the tests, chemo treatments, needles, and pokes. Despite all the troubles, she still remains loving and happy. Emry loves princesses, babies, kitties, and she really loves Birthday cake!

 

 

 

Elijah Hagstrom

Elijah HagstromOn July 7th, Elijah was taken to the hospital for a persistent fever. After a battery of tests and scans, his mom and dad were given news no parents ever wants to hear. Their sweet 6 year old little boy has a large tumor on his liver, which has already metastasized to his lungs and other areas around his liver.

Elijah is currently undergoing chemotherapy and has spent numerous nights in the hospital since July! Elijah loves nothing more than laughing with his big sister Olivia and getting into mischief together! He has an amazingly supportive mom and dad who wish and pray for nothing more than his cancer to be cured, and we are right there praying for that as well!! His smile and attitude despite the circumstances are inspiring to all those who he meets and even those he has never met but follow his story!!

 

 

Lauren Kinney

Lauren Kinney Memorial Day 2014, Lauren was diagnosed with an inoperable juvenile pilocytic astrocytoma. She had been exhibiting right sided weakness, headaches, etc. When her symptoms failed to resolve, we were advised to take her to the Skagit Regional hospital for a CT scan. This revealed a mass on the left side of her brain. This was a moment that changed our lives forever. We were sent to Seattle Children’s Hospital on emergency basis that night. The following day she underwent a 6 hour brain surgery, placing a VP shunt to drain the accumulated fluid on her brain and to also take a biopsy of the tumor. She was hospitalized in the P-ICU at Children’s for five days. Following this initial treatment she began a weekly outpatient regimen of chemotherapy. Most of her hair fell out, and she became dependent on getting her nutrition through a nasal feeding tube.

Through all of this, Lauren has always had an amazing, positive attitude. Her first day of kindergarten, she had almost no hair and a feeding tube in her nose; she just put a special sticker on her tube and absolutely rocked it! That course of chemo was cut short at 6 months due to some pretty serious allergic reactions that she had developed. We were able to discontinue chemo because her tumor had stabilized, only having quarterly MRI’s for almost two years before the tumor started to grow and cause symptoms again.

In July of 2016 she began a different chemotherapy protocol that is scheduled for about another year. In true Lauren style, she is conquering this too! We can’t stress enough what an amazing little fighter Lauren is!

 

Cheyenne Bailey

Cheyenne Bailey Cheyenne is a beautiful 15 year old who was diagnosed with B-Cell Leukemia in March!! Because her leukemia is chemo resistant she had to undergo T-Cell Therapy and last month had a bone marrow transplant. After the transplant she was placed in ICU, but her body responded well to the transplant. She is currently out of ICU and doing well!

Cheyenne has 2 brothers and 2 sisters. She and her mom are currently living at the Ronald McDonald House and her dad and siblings live in Graham.

Footprints of Fight feels honored to be able to provide their family with gas cards for family visits and house cleanings with your generous donations! Thank you for your support! Please keep Cheyenne and her family in your prayers!!

 

 

 

 

Joli Young

Joli Young Just weeks after Joli's 1st Birthday, on July 20th, she was diagnosed with a Wilm's Tumor. She underwent surgery two days later at Seattle Children's Hospital to remove her left kidney, the tumor and 6 lymph nodes. The tumor cells were also found in 1 of the lymph nodes so Joli has had to undergo radiation and chemotherapy. While her radiation therapy is now completed she is still navigating through a 24 week chemo schedule. Joli has had some side effects to the therapies but continues to prevail and keep her energy and spirits high. She has learned to walk through this ordeal and has become quite the chatty gal. Joli is known on the clinic floor for saying "hi" to EVERYONE in her sweet little voice... it's her favorite word and she sure is a sweet little day maker given everything she's going through.

 

Hunter Coffman

coffmanHunter Coffman is one little boy packed with personality. At only 2 years old and 3 felt tall, he is in a battle for his life as he was diagnosed December 28th 2015 with Medulloblastoma (a malignant fast growing brain tumor.) Hunter is from maple valley Washington along with his big brother chase who is 6, dad Atom, and mom, Laura. Hunter loves Thomas the trains, wrestling with big brother and playing outside in the sunshine.

While treatment has been hard he pushes through and keeps a smile on his cute little face. Hunter is being treated by the best doctors in the world at Seattle Childrens Hospital. He has had 3 rounds of very intense chemotherapy with amazing results. in the middle of June he started the final step in his treatment plan, proton therapy. He has treatment every day Monday-Friday for 30 sessions (6 weeks) at northwest hospital which is pretty far from home. As a family we are faithful that God is with us on every step of our journey. And at the end of radiation we pray Hunter has no evidence of disease.

 

Cadence Nield

Cadence Nield familyCadence was born with an inoperable brain tumor. She was diagnosed with a Pediatric Low Grade Glioma at 5 months old. It is located in her brain stem and spinal cord. Due to the dangerous location, it is not safe to biopsy, but it is being treated as a presumed Juvenile Pilocytic Astrocytoma (JPA).

Cadence is 5 1/2, she loves doing craft projects, playing with dolls, having tea parties, going to preschool, riding her tricycle, and playing board games. She can't wait till she can read! She loves Hello Kitty, Tinkerbell, butterflies, rainbows, peace signs, sparkles, glitter, pink, purple, turquoise, and anything girly! She loves music, especially Taylor Swift, and she enjoys going to her swimming lessons and gymnastics class. She wants to be a mommy, Doctor, and an artist when she grows up.

 

Siena Braun

sienna braun familySienna was diagnosed with Pre B ALL (acute lymphoblastic leukemia) on May 2, 2014. On July 1, 2015 Sienna relapsed with her cancer coming back in her spine. She is currently cancer free and recovering from a stem cell transplant.

Sienna is a lover of music and dance. But above all a lover of animals. Her dream is to open her own vet clinic where she will help all animals regardless of whether their owners can pay. She would give the shirt off her back for you if you asked. She loves her family more than anything.

 

 

Ellie Walton

Ellie Walton FamilyEllie was diagnosed at the age of 4 months old with a brain tumor. Originally the diagnose was a benign brain tumor called desmoplastic infantile ganglioglioma. Four months after the diagnose, her tumor grew and became desmoplastic infantile ganglioglioma / astrocytoma. She then started chemo at 8 months old which would last for 9 months. In June 2015, Ellie’s tumor grew again and changed the type of tumor to glioblastoma multiforme stage four, which required radiation and another round of chemo.

Since birth, Ellie has had 17 surgeries. As a result of all the treatment Ellie has hydrocephalus, neuropathy, hearing loss, a non-functioning pituitary gland, and various learning / physical problems.
Ellie is currently 3 years old and loves the outdoors. She is feisty, courageous, and loves to act. She is a huge animal lover, and never leaves her sisters side. She is loving, caring, kind, and one heck of a fighter!

 

 

 

Alyssa Wendell

Alyssa Wendell FamilyIn 2010, Alyssa was diagnosed with high risk Leukemia at the age of 12 months old. She was in treatment for 2 years in Walter Reed Army hospital in Washington DC where she underwent many rounds of radiation and chemotherapy until the age 3.

In March 2013, Alyssa and her family moved to Joint Base Fort Lewis McCord. In March 2015 Alyssa showed signs that's something was wrong, and a short time later received the news that the cancer is back. Treatment was started immediately at the Madigan Army hospital and then moved to Cancer Care Alliance and Seattle Children’s Hospital in September 2015. Alyssa needed a transplant in which her older brother, Jacob was a 100% match for her! Currently, Alyssa is travelling down the long road to recovery where to keep her healthy, she can’t be around a lot of people, can’t go to school, can’t attend day care, and needs to limit the amount of time spent in public places.

Alyssa is a fire cracker and a fighter! Everybody who has met her at Seattle Children’s hospital knows her laugh, her dance, and her clothes, especially her dresses. Currently, Alyssa cannot attend school, but will do a happy dance when she can go back. She is a proud daughter of a soldier and totally a daddy's girl.